09-10-22
Another family day is coming! We can exchange experiences together, catch up and we will share news about the scientific research. And of course we will also enjoy good food and the music and activities. Everyone who is facing the rare muscle disease Lama2 MD (or MDC1A) is welcome. Please sign up, via info@voorsara.nl.
Lotgenotendag 2022
Er komt weer een lotgenotendag aan! Samen ervaringen uitwisselen, bijkletsen en nieuws over de onderzoeken delen. En natuurlijk ook lekker eten en genieten van de muziek en activiteiten. Iedereen die in aanraking is gekomen met de zeldzame spierziekte Lama2 MD (oftewel MDC1A) is welkom. Wel graag even aanmelden, dat kan via info@voorsara.nl.
Another family day is coming! We can exchange experiences together, catch up and we will share news about the scientific research. And of course we will also enjoy good food and the music and activities. Everyone who is facing the rare muscle disease Lama2 MD (or MDC1A) is welcome. Please sign up, via info@voorsara.nl.